My Prognosis

Expectations

My medical prognosis is good right now.  I was diagnosed with Neurofibromatosis on April 16, 2010, when I was three years old.  I have a brain tumor called an optic glioma, and my 12th MRI in January 2018 showed that it was stable, and it has been for a couple of years.  I have lost some vision and ability to see color in my right eye.  I have a few plexiform, but they have not been problematic.  I am receiving assistance at school for speech and reading, and this has helped tremendously.  NF is a progressive disease, so we hope for the best.  We help others fight this horrible disease, and we live every day full and happy!

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